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A Forum for Parents of Multiples in Singapore
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| Viewing Page 1 of 1 (Total Posts: 5) |
| Author | Comment |
Janice
 Mar 30, 07 - 1:06 AM |
cleft lip / palate baby
Hi, During my 5th month scanning, the doc detected the smaller baby may have a cleft / palate. This news have hit me with even more worries about the development of the babies, and future feeding problems. Does anyone have any experience with baby with cleft lip and palate? |
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Cecile
Apr 4th, 2007 - 3:55 PM |
Re: cleft lip / palate baby
Hi Janice For any medical condition I always check our Kids Med section on the www.twinsplussing.com/links.htm Here's what I have found abt Cleft Lip. I hope that can help you. http://www.kidshealth.org/PageManager.jsp?dn=familydoctor&lic=44&article_set=21024 However I must say there is nothing best than finding a forum of discussion that talks abt this subject to meet other mums who 'have been through it'! I wish you good luck for your little one(s), and a smooth pregnancy! Cecile |
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dominique Chew
Apr 10th, 2007 - 1:58 AM |
Re: cleft lip / palate baby
Hi Janice That must be worrying for you. Just something to keep in mind cos it is still very early days yet. As the twins get older, it might be an idea to just check with a speech therapist who specials in feeding. There are certain techniques that can be use when they are feeding that will help encourage better use of the lips, tongu which would also help later on with speech. Just keep that in mind cos it still is very very early. e mail if you need to. I'm an occupational therapist. Dominique |
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*sasha*
Apr 18th, 2007 - 11:31 PM |
Re: cleft lip / palate baby
Hi Janice, Apologies if this came late. So sorry to hear the news on your baby. Has your gynae confirmed anything since your 5th mth scan? Personally, I do not have any experience wt babies born wt cleft lip & palate although I do know of some mothers who does have the experience. Where will you be delivering your babies? There is a very gd & well-set up cleft centre at KKH. You can contact the coordinators listed below & they will be happy to arrange a meet-up with you to explain what happens when your child is born. It is a long & tough journey, but you wont be alone. http://www.kkh.com.sg/ForPatientsnVisitors/SupportGroups/children.htm Craniofacial Support Group Managed by craniofacial affected families, volunteers & coordinators, the support group provides mutual support, interaction & friendship building. It aims to share experiences so that craniofacial affected children can grow up happy & confident. The support group is made up of smaller groups, including: Cleft Lip and Palate Group Craniosynostosis Group Aperts Group Hemifacial Microsomia (HFM) Group Haemangioma Group One Saturday each month is designated “Activities Day”. This is when parents, patients, keen interested personnel or volunteers participate in activities such as arts workshop, yoga, counseling workshop etc. The cleft & craniofacial team also conducts continuing education to enforce awareness & knowledge of the condition. To join, contact coordinator Josephine Tan (tel: 6394 5034 or Email: josephine.tan@kkh.com.sg) or Nurse Specialist & research coordinator Joanne Cheng (tel: 6394 5035 or Email: joanne.cheng@kkh.com.sg). The team of doctors at KKH are all very kind & nice. Rest assured that your child will be in good hands if you do deliver at KKH. http://www.kkh.com.sg/MedicalSpecialtiesnServices/ChildrensHospital/Surgical/PlasticnReconstructiveSurgery/ I hope this helps! |
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Janice
May 8th, 2007 - 6:44 PM |
Re: cleft lip / palate baby
Hi all, Thanks for the suggestions. I visited KKH last week and they really provide very good service. I've already signed up with them, and gathered the essential info needed. Though its quite disheartening to know that the poor baby has to go through surgeries at such young age but after seeing some similar patients, I'm not as worried, at least for now. One more month to meet the 2 babies, really hope the sizes are good when they are dued 
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