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Paul Robinson (aka Bleee)



Paul has just told me some dreadful news. He's been diagnosed with the engineers' worst nightmare, mesothelioma. Paul writes "I had an ambulance ride to A&E with a collapsed lung and they found it was caused by fluid, x-rays showed the fluid but no shadows so they drained 5 litres of fluid and inserted a camera with a biopsy device attached, they observed lesions on my pleura and took biopsies from 8 lesions, they were confirmed as mesothelioma so I am now considering options to extend my life but I am unable to get any definitive life expectancy. I have a dedicated mesothelioma nurse from a charity organisation for asbestos related illness and I will be talking to her today to see if I can get more information."

The next paragraph is pretty scary for us all "I've had annual x-rays for many years right up to July this year specifically looking for asbestos related problems and even during my recent spell in hospital the x-rays and a CT scan did not pick it up, it was only directly looking with a camera that it was diagnosed."

I'm posting this with Paul's permission as I'm a great believer in the power of positive thought, religious people call it prayer but I just believe it's the power of the mind and the more minds thinking the same thing at the same time expands that power.

We're thinking of you mate!



Re: Paul Robinson (aka Bleee)

That's a worry.

I worked in clouds of asbestos powder when fitting out the engine room on HMAS Torrens, a steam turbine destroyer escort at Cockatoo Island in 1968/69. The laggers made a huge mess lagging the turbines, pipes, etc for months.

I've had a specialist look at my lungs some years ago. He said that there were minor scars but possibly no worry. I'll be 70 soon. So far so good.

Where are you from: Bilgola - Sydney Northern Beaches

Re: Paul Robinson (aka Bleee)

I think we will all have been breathing in asbestos dust at one time or another . That is worrying that it was only picked up with specialist tests . I also worked in the coal mines apprenticeship etc more worries . I have had various x Ray's nothing showing . . Now it is diagnosed you will get looked after as much as poss . I am 78 yrs old next birthday. Take care hope all goes well for you and your family. Colin

Where are you from: Silloth Cumbria UK

Re: Paul Robinson (aka Bleee)

Further to my post above, we were never told that asbestos was dangerous during my apprenticeship from 1965 to 1970.

Where are you from: Bilgola - Sydney Northern Beaches

Re: Paul Robinson (aka Bleee)

And we were not made aware of the issues. At the age of 16 to 21 we didn't think of health problems.

Where are you from: Bilgola - Sydney Northern Beaches

Re: Paul Robinson (aka Bleee)

Paul.
My industry shipbuilding is rife with it.
I know people who have been diagnosed for ten years and look better than i do.
Stay positive and just get on with your life.
Cheers
Don Cole.

Where are you from: Barrow

Re: Paul Robinson (aka Bleee)

Well said Don.

Re: Paul Robinson (aka Bleee)

Sorry to hear Blee. We have all been in the Asbestos environment at some. The Big"O" had blue asbestos, the Steelworks was rife with it and Brown Asbestos was in the Hospitals, all of which I have been in employment.
Yes life is precious, get on with it - I can see more Cruises being booked.
Keep in touch mate.

Where are you from: Parkham Devon (originally Barnsley)

Re: Paul Robinson (aka Bleee)

I was exposed to asbestos before I went to sea, and more whilst at sea. Some years ago a doctor told me I had calcification of the lungs as a result. He also said that it would most likely turn to cancer at some time in the future. I'm 72 now and still OK. Kweep smiling - it works for me!

Where are you from: Ipswich originally, now Chandlers Ford, Hampshire.

Re: Paul Robinson (aka Bleee)

I am so sorry to hear this, Paul and wish you all the very best. I hope that your condition responds to treatment and am thinking of you.

Alan

Where are you from: Ringwood, England

Re: Paul Robinson (aka Bleee)

Paul, I echo Alans comments and hope you get good news from the nurse. Thinking about you mate.

Where are you from: Glasgow, originally Barrow

Re: Paul Robinson (aka Bleee)

Glyn Dodson
Paul, I echo Alans comments and hope you get good news from the nurse. Thinking about you mate.
just how many of us are there out there unaware of what the conditions were when working perhaps VB Allsops P&O Gin Guiness and Tonic and Crew Rum etc werent that bad after all good luck mate

Where are you from: sandwich kent

Re: Paul Robinson (aka Bleee)

Thanks guys for your support but unfortunately after a couple of meetings with Nurses and Doctors it appears the only treatment they can offer is chemotherapy which is virtually ineffective, so not much point in going through it.
So Gill and I have made the decision to get over to Australia as soon as possible and try our luck there, if nothing is availability we will at least miss the worst of the UK winter.
All the best Paul (Bleeeee).

Where are you from: Emsworth Hants UK

Re: Paul Robinson (aka Bleee)

All the best Paul, I hope you get the best possible treatment. Stay in touch please.

Re: Paul Robinson (aka Bleee)

Here's a very sad update to Paul's situation sent to me yesterday.

"Not been doing too well lately, I persisted for several months to get on the latest immunotherapy super drug only to find the side effects have put me in hospital twice in the last couple of months so I'm forced to stop with no alternatives left, so I will have to let the insidious disease take its course. We can't risk cruising or international travel anymore because I can't get travel insurance but we now have a lovely little dog and we take her anywhere we can get a dog-friendly cottage stay or even some hotels for a weeks break. I'm resigned to my fate and cheer myself up with the thoughts that I've lived nearly a year longer than I was first advised (now every day is a further bonus), I've had a great life and I have never been greedy (except maybe where beer is concerned!!!). In the end this disease is completely random, the thing to do is enjoy as much as you can and bugger getting too hung up on health routines because it seems to make little or no difference to longevity and whilst you're being miserable something else will creep up and whack you."

This gives us a very rare opportunity to say what he's meant to us so he can read all the comments instead of what's normally written posthumously.





Paul was like all the brilliant guys I met at sea, like minded but totally unique. The life and soul of every gathering and I never heard him say one bad word about anybody. Knowing Paul enriched my life and so many things happen almost daily that reminds me of his crazy capers but not a better friend there is to have.


Where are you from: Perth

Re: Paul Robinson (aka Bleee)

I wish you all the best, Paul. I agree with your comments about living your life. As I mentioned earlier in this item, I was exposed and I won't start worrying until something happens.

Keep the positive attitude Paul.

Where are you from: Bilgola Plateau - Sydney Northern Beaches